Free for all patients

Find Your Path to
Better Treatment

AmyloidConnect matches amyloidosis patients to clinical trials using AI โ€” and helps them get there. Free, fast, and built for patients first.

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โš•๏ธ Educational only ยท 3 free questions ยท No sign-up required

4,000+
US Diagnoses / Year
100%
Free for Patients
AI
Powered Matching
3
Amyloid Types Covered

What is Amyloidosis?

Amyloidosis is a rare disease where abnormal proteins called amyloid fibrils build up in organs โ€” slowly damaging the heart, kidneys, liver, and nerves. Early diagnosis and type identification is critical because treatments differ significantly by type.

๐Ÿงช AL Amyloidosis

Light Chain Amyloidosis

Caused by abnormal plasma cells in the bone marrow producing misfolded light chain proteins. Can affect multiple organs simultaneously and progresses quickly without treatment.

Affects heart, kidneys, liver, and nerves
Not inherited โ€” affects adults of any age
Treated with chemotherapy and stem cell transplant
๐Ÿ’œ ATTR Amyloidosis

Transthyretin Amyloidosis

Caused by the transthyretin protein made by the liver becoming unstable and depositing in the heart. Can be age-related (wild-type) or inherited (hereditary ATTR).

Primarily affects the heart (cardiomyopathy)
Hereditary form more common in African Americans
New FDA-approved treatments now available

Everything a Patient Needs

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AI Trial Matching

Our AI matches you to clinical trials based on your specific amyloid type, organ involvement, treatment history, and location โ€” in minutes, for free.

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Travel Coordination

Book flights, hotels, and ground transportation to your trial site through SanoGrid โ€” our integrated travel platform built specifically for clinical trial patients.

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Disease Education

Comprehensive resources on AL, ATTR, and AA amyloidosis โ€” symptoms, diagnosis, treatment options, and what to ask your doctor.

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Specialist Finder

Find amyloidosis centers of excellence and specialists near you โ€” including Mayo Clinic, Boston Medical Center, and Stanford.

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Patient Community

Connect with other amyloidosis patients, share experiences, and find support from people who truly understand what you're going through.

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HIPAA Compliant

Your health data is protected with enterprise-grade security. We never sell your information and you control what you share.

From Diagnosis to Trial in Minutes

We've simplified the clinical trial discovery process so patients can focus on what matters โ€” getting better.

1

Create Your Profile

Enter your amyloid type, organ involvement, and treatment history.

2

Get Matched

Our AI instantly finds clinical trials that fit your specific situation.

3

Review Trials

Compare trials, read eligibility criteria, and save the ones that interest you.

4

Book Travel

Coordinate flights, hotels, and ground transportation โ€” all in one place.

Understanding Your Type Matters

Amyloidosis has multiple types โ€” and the treatment is completely different for each. Knowing your type from day one changes everything.

AL Amyloidosis

Light Chain

Caused by abnormal plasma cells in the bone marrow producing misfolded proteins that deposit in organs.

โ†’Affects heart, kidneys, liver, nerves
โ†’Not inherited โ€” any age
โ†’Treated with chemo + stem cell transplant
โ†’Fast progression โ€” early diagnosis critical
ATTR Amyloidosis

Transthyretin

Caused by the transthyretin protein made by the liver becoming unstable and depositing in the heart and nerves.

โ†’Wild-type (age-related) or hereditary
โ†’Primarily affects the heart
โ†’FDA-approved treatments now available
โ†’V122I variant common in African Americans
AA Amyloidosis

Serum Amyloid A

Caused by chronic inflammation from conditions like rheumatoid arthritis or inflammatory bowel disease.

โ†’Primarily affects the kidneys
โ†’Linked to chronic inflammatory disease
โ†’Treat the underlying inflammation first
โ†’SAA levels guide treatment response

Symptoms Often Mistaken for Other Conditions

Amyloidosis is diagnosed on average 2-3 years after symptoms begin. Recognizing the pattern early saves lives.

Learn More โ†’
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Heart
Shortness of breath, swelling, irregular heartbeat
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Kidneys
Foamy urine, swollen ankles, protein leakage
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Nerves
Numbness, tingling, digestive issues
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General
Extreme fatigue, weight loss, enlarged tongue

The Path to Diagnosis

Amyloidosis requires specialized testing. Understanding the diagnostic process helps you advocate for yourself and get answers faster.

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Blood & Urine
Free light chain assay, serum protein electrophoresis
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Biopsy
Fat pad or organ biopsy stained with Congo red dye
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Bone Marrow
Identifies abnormal plasma cells for AL typing
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Organ Tests
Echo, kidney panels, nerve conduction studies
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Type Confirmation
Confirm AL vs ATTR vs AA โ€” treatment depends on this

See a Specialist Who Knows Amyloidosis

General hospitals often miss amyloidosis. Specialized centers have teams who see amyloidosis patients every day and have access to the latest treatments and trials.

Find a Specialist โ†’
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Boston Medical Center
Amyloidosis Center โ€” Boston, MA
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Mayo Clinic
Amyloidosis Program โ€” Rochester, MN
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Stanford Medical Center
Amyloid Center โ€” Stanford, CA
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University of Chicago Medicine
Amyloidosis Program โ€” Chicago, IL

Care Copilot

Your personal AI health companion โ€” ask anything about amyloidosis, understand your clinical trials, and get your lab results interpreted in plain English.

โœจ Premium Feature โ€” 3 free questions to start
๐Ÿ’ฌ Ask anything about amyloidosis
๐Ÿงช Upload & interpret lab results
๐ŸŽฏ Profile-aware answers
๐Ÿ“‹ Understand your clinical trials
๐Ÿฅ Find the right specialist
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Care Copilot
by AmyloidConnect ยท Amyloidosis AI Assistant
Online
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Hi! I'm Care Copilot, your personal amyloidosis AI companion. I can answer questions about your condition, explain clinical trials, and help you prepare for doctor visits. Premium members can also upload lab results for interpretation. You have 3 free questions โ€” what would you like to know?

3 free questions remaining

โš•๏ธ For educational purposes only. Always consult your physician for medical advice.

Built to Give Every Patient a Fighting Chance

AmyloidConnect exists because too many amyloidosis patients never find the clinical trials that could save their lives โ€” not because the trials don't exist, but because the path to finding them is broken.

We built a platform that does the hard work for patients โ€” matching them to trials based on their specific amyloid type and organ involvement, educating them about their condition, and removing the logistical barriers that prevent trial participation.

AmyloidConnect is free for every patient. Always.

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Clinical Trial Access
AI-powered matching connects patients to the right trials based on their exact diagnosis.
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Patient Education
Type-specific disease education so patients understand amyloidosis from day one.
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Travel Coordination
SanoGrid removes the logistical barriers that prevent patients from getting to trials.
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Doctor Discussion Guide
Personalized questions for every doctor visit โ€” auto-generated from the patient profile.
62
Clinical Trials
12
Patients Enrolled
115
Community Members
3
Healthcare Providers
Chief Medical Advisor
NS
Dr. Nitasha Sarswat
MD โ€” Cardiologist & Amyloidosis Specialist
University of Illinois Chicago

Dr. Sarswat brings deep clinical expertise in cardiac amyloidosis to guide AmyloidConnect's medical direction and patient education content.

A Growing Community of Patients, Caregivers & Advocates

You are not alone. Connect with others who understand what it means to live with amyloidosis.

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AmyloidConnect Page

115
Followers

News, updates, patient education content, and clinical trial announcements. Follow us to stay informed about the latest in amyloidosis care.

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Patient Community Group

55
Members

A private, supportive space for amyloidosis patients and caregivers to share experiences, ask questions, and find community with people who truly understand.

Join the Community โ†’

Ready to Find Your Clinical Trial?

Join amyloidosis patients using AmyloidConnect to find trials, access education, and coordinate care โ€” all for free.

Get Started Free โ†’

Always Free for Patients

AmyloidConnect is and will always be free for patients and caregivers. No subscriptions. No hidden fees. Just help finding the care you deserve.

Find Clinical Trials Now โ†’